Admittedly, dads are a little… well, dad, sometimes. For that reason we’re starting an AGS Dads group. E-mail ags-dads@agsamericas.org to join. We’re holding our first virtual get-together on Saturday, January 29 from 6:00 – 7:00pm EST.
AGS Patient Registry
We are so incredibly excited to announce the launch of the AGS Patient Registry. The AGSAA has partnered with Luna and Genetic Alliance to put our community in the driver’s seat while we race to advance policy, medicine, and AGS care. In AGS as in other rare diseases, our stories are our superpower!
2022 AGS Family Symposium
We’re excited to announce our virtual family symposium held in partnership with the Children’s Hospital of Philadelphia’s Leukodystrophy Center of Excellence. We’re planning a day of research updates, socialization, and fun. Click to learn more and register, and we’ll keep you up to date as we finalize the agenda and details!
